Kidney Cancer Research Lobbying Campaignby Jay Bitkower on March 2, 2011
Join our “March on Washington” Monday March 7 and Tuesday March 8
Dear Kidney Cancer Survivor/Caregiver,
As a kidney cancer survivor or caregiver, you know the horrors of this disease and the lack of effective durable treatment for metastatic disease. You are probably also aware that none of the new drugs approved to fight kidney cancer in the last few years have provided a cure with the best of them extending life by only 14 months over standard care. We need more effective drugs and other therapies to screen and treat metastatic kidney cancer. We need the research money that it will take to develop these treatments and next month Action to Cure Kidney Cancer will be going to Washington to lobby Congress for $15 million for kidney cancer research. We need you to join in this campaign.
2011 marks the eighth year that ACKC has sought to include kidney cancer funding in the Department of Defense’s Congressionally Directed Medical Research Program (CDMRP), which is currently funding breast, prostate and ovarian cancers, but not kidney cancer. The $15 million that we are requesting for kidney cancer research would in effect double the real kidney cancer research funding by the federal government. Although we haven’t achieved that goal yet, we have gotten kidney cancer added as a research area in another DoD program, the Peer Reviewed Cancer Research Program (PRCRP), and kidney cancer researchers have won grants totaling $2.7 million in the last four years. The following researchers have won grants through this program: Maria Czyzyk-Krzeska of the University of Cincinnati to study the genetic origin of kidney cancer, Geoffrey Clark of the University of Louisville to study tumor suppressor genes, and Richard Drake of Eastern Virginia Medical School and Alexander Parker of the Mayo Clinic, Jacksonville, in a joint award to develop tools to accurately predict who is at risk of metastasis after nephrectomy. These grants were obtained as a direct result of ACKC’s advocacy efforts supported by kidney cancer survivors and caregivers like you throughout our country.
Please respond by email ASAP if you can join us in Washington so we can obtain hotel reservations and to schedule meetings with your members of Congress or their health aides. If you can’t join us personally, you can help by writing/calling your members of Congress or their health aides. Email us at cureRCC@gmail.com with your state of residency, and we will provide you with the talking points and other logistical information you will need to help get the kidney cancer research appropriation.