Association of Cancer Online Resources (ACOR)

(Note: The following information was obtained from the ACOR website and was modified to reflect Kidney Cancer)

What is ACOR?

The ACOR list is a free, unmoderated discussion list for patients, family, friends, researchers, and physicians, to discuss clinical and non-clinical issues and advances pertaining to kidney cancer. This includes information about patient experiences, psychosocial issues, new research, clinical trials, and discussions of current treatment practices as well as alternative treatments.

The principal focus is usually accurate and current information as well as reassurance for patients and loved ones, but professionals are more than welcome to participate and share their expertise.

Commercial solicitations and postings are strictly prohibited on the ACOR list.

Similarly the use of the list for research purpose or to data mining is STRICTLY prohibited without PRIOR approval of the three listowners Robin Martinez, Trish Miller and Cathy Sherman.

The quality of the exchanges is based on the monitoring of the list by a group of volunteers, known as listowners. The Kidney Cancer list is managed by three listowners (Robin Martinez, Trish Miller and Cathy Sherman) and those volunteers are in charge of all the details necessary to guarantee fast daily operations.

Abuse of your posting privileges by using the list to promote any unproven therapy will result in the immediate termination of your subscription.

If you are a patient or a caregiver looking for information regarding any specific aspect of kidney cancer, you are encouraged to join the list. To find out the kidney cancer list, you can either check the entire list of public lists or you can search by type or by disease. The majority of lists primarily focus on a specific type of cancer.

The kidney cancer list has over 1200 members. Therefore the list generates a high volume of daily emails. If you subscribe to the list expect a lot of mail! You may wish to have your emails from the list to you consolidated into one or two emails per day that include all the postings. For this, select the “digest” option when you sign onto the list.

There is a growing body of evidence that participation in support groups can be of benefit to cancer patients and their loved ones. Just recently, a study in the journal “Psycho-Oncology” showed that socializing with others lessens the depression risk among newly diagnosed cancer patients.

Not enough has been done to quantify and validate the effects of online medical support groups, but a recent editorial of the British Medical Journal, entitled “From patients to end-users” states: “We believe that the 21st century will be the age of the net empowered medical end user and that the patient driven online support networks of today will evolve into more robust and capable medical guidance systems that will allow end users to direct and control an ever growing portion of their own medical care”.

The list is available 24 hours per day and 7 days per week so you can contact the list at your convenience. Many new members start by reading emails (called “lurking”) until they feel comfortable and then start asking questions. There is no right or wrong approach. You will find that your questions will be answered thoughtfully and with compassion. It is a great place to go if you are depressed, angry or frustrated because you can vent your feelings without being judged since many members have gone through what you are experiencing.

How do I join a list?

Subscribing With a Web Form

ACOR (which hosts the list) has an easy to use list subscription form. You will still have to reply to the confirmation message as described below.

P.S. While you are there, do yourself a big favor and bookmark the subscription page – you can use this page to change or delete your subscription later.

Subscribing Manually

To subscribe to a list (e.g. KIDNEY-ONC) follow these instructions:

Send a message to listserv@listserv.acor.org Leave the subject blank, and make the first line of the message:

subscribe name of list (e.g. KIDNEY-ONC) your-first-name your-last-name

for example:

subscribe KIDNEY-ONC John Doe

You will get a message back asking you to confirm your subscription. Reply to the message following the instructions contained in the message. You should then get a message back saying you’ve been added to the list. Shortly afterwards you will start receiving messages from the list