Useful Links

Steve Dunn’s Cancer Guide: http://cancerguide.org/index.html

This is the most comprehensive site targeted to a cancer patient’s needs to be found anywhere. It was developed by a 16-year survivor of kidney cancer and the founder of the kidney cancer listserv Kidney-ONC.

VHL Family Alliance: http://www.vhl.org/

This organization serves those individuals and families stricken by Von Hippel- Lindau disease, a mostly inheritable genetic disease that often manifests kidney tumors.

Birt Hogg Dubè Family Alliance: www.BHDSyndrome.org/

This organization supports families stricken by the genetic syndrome called Birt Hogg Dubè, which can include metastatic kidney cancer.

Kidney Cancer Canada: http://www.kidneycancercanada.org/

Kidney Cancer Canada is a patient-led support and advocacy organization whose mission is to increase awareness about kidney cancer and provide timely information to patients and caregivers facing a diagnosis of kidney cancer. Kidney Cancer Canada plays a
key support and advocacy role in Canada working with rcc specialists across the country.

National Cancer Institute (NCI): http://www.cancer.gov/cancertopics/types/kidney

The NCI’s kidney cancer page with an index into their programs, documents, research activities, etc. relating to kidney cancer.

American Cancer Society (ACS): http://www.cancer.org/docroot/STT/stt_0.asp

For a view for ACS’s cancer statistics publications, download one of their reports. Their basic report, “Cancer Facts and Figures” contains projected incidence and mortality figures for each cancer type.

Cancer Care: http://www.cancercare.org/

Provides support services to cancer patients, caregivers, and families, and limited financial aid.

Seeds of Joy Foundation: www.cancerwarsmaarsjourney.com

Founded by Gerald White, a 15-year survivor of stage 4 kidney cancer, this site presents his program of guided imagery as a complementary approach to medical therapy to activate the immune system to fight ones cancer.

American Society of Clinical Oncology (ASCO): http://www.asco.org

The ASCO Annual Meeting is the major oncology conference in the world with over 29,000 attendees, half of them from foreign countries.

Cancer.net: http://www.cancer.net/

This is the survivorship arm of ASCO, and deals with both general survivorship issues and describes features of specific cancer types including kidney cancer.